Archive for the ‘COPD’ Category

So, I saw my new COPD nursey yesterday. She’s a real sweetie but I’m not sure how poorly she thinks I am. Apparently, I’m stage 3 COPD, there’s only four so I’m nearly at the top already: Actually, that’s not funny but humour helps me deal with it. She went on to review my spirometry results and was confused that I had improved. It must have been a good air day methinks.  🙂 Nevertheless, at under 50% this is still less than one lungs worth (I know it’s not strictly true but in Podge’s world this works for me 🙂 )

Nursey upgraded my medication, I’d been on the same stuff since being upgraded from Asthma to COPD and asked if I would like to consider Pulmonary Rehab. I asked if this was where they taught you how to breath cos if it is, I assured her I had been breathing now for 62 and 2/3rd years. But I did understand what was meant so I agreed.

She then asked if I ever got down. Well to be honest, yes I do, and yes I do have the same thoughts described in the linked article above, thus:

  • Am I getting an infection in my lungs?
  • Is this the start of something really bad?
  • Am I developing pneumonia?
  • Will this lead to a stay in the hospital? (this week, it nearly did)
  • Am I going “downhill,” will I ever feel better again, or is this “it?”

I’ve had all of these thoughts and in fact just a few months ago I had entered what I term, the Valley of Despair, though I never shared this fact. But then, I read an article about a guy in Australia  (#copdathlete) with COPD but who’s lungs were operating at less than 30% (mine are 47%) but had recently completed the New York Marathon. Boy, did he inspire me and boy, did he lift me from the Valley of Despair. Spurred on by his achievements, I duly entered the Great South Run 5K  (22nd October) and the Great South Run (23rd October). and started walking lots. Why did I enter both. Well my rational is if I can complete the 5K but not up to the 10 mile then at least I’ve achieved something. If I compete both, well, that would be an achievement and half for me.

Anyway, back to the recap and me getting down, Nursey asked if I wanted anything for it, I guessed she meant anti-depressants and not Laphroaig Whisky so I politely declined the offer on the basis that such drugs was not a road I was happy to go down. And no, I didn’t want a Counsellor either. She recognised my stubborn independence and assured me that if I needed help or just to talk, to phone her. For that I was grateful. She even offered my an option on a district nurse checkin in on me at home if I required. Again, I declined but with thanks: I spend 2.5 hours each way computing to and from work so not sure when I would get a chance to see a nurse anyway.

Anyway, just three days after seeing Nursey, I went downhill, badly, and I took myself to the surgery where upon they sent waiting patients home so that they could look after me: Three of the thoughts above were once more in my head. Nursey tried to persuade me to go to hospital but I didn’t want to but she told me in no uncertain terms that if I declined again I must call an ambulance. Nursey has ever since been phoning me at home just to make sure I was ok (Podge likes Nursey).

5-days after I am still not too good (going to the bathroom leaves me out of breath) but hope to return to normality come Monday and once again I can start my walking regime for the great runs (or maybe walks).

I’m hoping that the new drugs will work, the steroids & antibiotics are beating the crap out  of this current infection and my weight is dropping: In the last there months, I’ve lost 7kgs so I’m well happy with that. And, now that I’ve consumed all my sherries I will once more cut out milk. In the mean time, the walking will continue and have upped my daily target to from 10,000 15,000 steps (at this rate, I’ll be walking to work).

Stay in touch and I’ll keep you posted on my progress and although today I don’t quite feel up to it, wish me well for the runs in October.

Poor Podge 🙂

 

One year ago I saw my heart vet doctor (I know this because Facebook reminded me 🙂 ). It was a notable visit but not for the right reasons. Read on.

05/05/15
So, today I saw my heart vet. What a waste of time; what a waste of space. “So” he says, “What’s been happening to you?” he asked.
“I’ve had two cardio versions” I said: “That’s where they stop and start you heart” I clarify for him.
“How did it go?” he asks.
I was tempted to say ‘Well, I’m still alive’ but I resisted. Instead I asked “What does it say in your notes?” 
“I haven’t got any” he says.
“Well” I say, “They failed”.
“So what did they say?” he asks.
“What does it say in your notes?” I ask back.
“I haven’t got any” he says.
“I have” I say, “do you want to see them?” I ask. I gave him my notes and he looked through them.
“Oh, yes your right, they didn’t work.” “What tablets are you on?” he asks.
I give him the list: A copy of the same list I gave him on a previous visit.
“Well, you don’t need these ones, or those ones. You might as well stop them”.
I looked at the ones he was pointing at. One was my anti-coagulant (Dabigatran) – apparently this was to stop me having a stroke and, on the basis that I haven’t had a stroke, they were clearly doing their job. Joking aside however, I was not going to stop them.

“But they’re doing a better job than the cardio versions” I say.
“No he says, you don’t need them. Anyway, how have you been?” He asks.
“Well, I was ok but I’ve gone downhill over the past week.” 

“Hmm” says he, “Why do you think that is then?” he asks.
“Oh, I’ve probably got a bug or virus.” I say.
“Yes, that’ll be it” he says. He checks my pulse; I’m still living. He’s happy but, suggests that we do a 24hour trace and a heart scan then we’ll see what to do next.
I was then summarily despatched.
My verdict? I’m staying on my drugs and deal with it my way. And, if I get ill again, instead of asking him what might be the problem I’ll just cut out the middle man and ask myself.
If I never see him again, it’ll be too soon.

Anyway, back to the present.Over the last couple of weeks I’ve felt quite well buoyed on maybe by the articles I’d read of a COPD patient (stage 4) having completed the New York Marathon and, since reading about that, I’ve subsequently seen other positive stories.

So, I’ve made my mine up…

I’m going to stop feeling sorry for myself (there a are a lot of people far worse off than me) and ‘turn myself around’. To this end I’ve signed up for the Great South Run, preceded by the Great South 5K Run. My rational being that I’ll do the 5K run and I feel up to it, I’ll then do the main run. If I don’t feel up to it, at least I’ve done the 5K (both are on the sae day).

So, let’s look at my obstacles:

I’m fat – I weigh 99kg, I should weigh 76 Kg: I’d like to weigh 70Kg – (I want to be an Adonis, I never have been, I never will be but one has to have a dream) 🙂

I’m lazy – watching GoggleBox is more appealing than going for a walk (guess I’ll never be an Adonis then) 😦

I have COPD Stage 2 / stage 3 – The jury’s still out on which stage

My peak flow is around 320 (I don’t know what it should be but my guesstimate is around 500 – 550 – assuming good health)

I have arrhythmia / atrial fibrillation or, something similar but the ageing ticker seems to be behaving lately:

IMG_2903

Podge’s Heart Scales

I have a full time job: This is my normal work day:

  • Get up around 05:00 followed by normal getting up in the morning stuff.
  • Walk  1 km to the train station; catch train; switch train; switch train; switch train.
  • Arrive at work around 08:30
  • Work, work, work – desk based
  • Finish work 17:30 – 18:00
  • Reverse train route
  • Mrs Me picks me up at the station
  • Arrive home 20:00 – 20:30.
  • Try to go to be the same day I got up.

And in amongst all that, I need to try to work out how I’m going to prepare for my run. I do have thoughts on this.

So far, my walk to the station is going well: When I was holiday I could hardly walk to the end of the cruise ship. Today, I reckon I can walk a mile. By the end of May, I want to be able to walk 3-miles then, I’ll get on my bike again (if I can find it)

My next question is, do I revisit the [Milk: Good Food? Bad Food?] debate? I think I should.

I’m sixty two and a half and will be eligible for retirement in two and a half years. I want to be able to retire and enjoy retirement. If I do nothing else, I should stop being fat and in my mind, exercise is a major factor.

Oh and by the way. I’ve done the 24hr trace and had the scan but I haven’t been invited back to see him yet. I’m in no hurry.

This time, it’s not Poor Podge but:

Go Podge, Go

Wish me luck…

My next post will be about more exciting stuff, cruising. Yay.

I was recently sent to the COPD Nurse for what should be an annual review. I duly arrived at the surgery with plenty of time to spare and sat myself in a comfy chair and amused myself, whiling away a few ‘downtime minutes’ playing Candy Crush (I know, I need to get a life). Eventually, my name was called and into [the room] I went.

“Kevin, are you sure you’re OK” asked the nurse, ‘You’re breathing seems bad and your eyes are all red & puffy”. Thinking to myself ‘it’s probably not worthing asking for a date then’ I explained that me breathing has been bad for the last five weeks and that I had been eating steroids and antibiotics over the same period; “Otherwise, I’m fine” I say.

The nurse, having satisfied herself that I was ok to continue, then explained that she wanted to be breath into a tube connected to a breathing rate analyser (I don’t know what its really called). It looks a bit like those devices the Police use when they think you’ve been drinking and driving – I stress that I have no personal experiences of such things. Before ‘the breath test’ the nurse asked about my medication etc, after which she asked “Have you got COPD?”. “Yes” I replied, “That’s why I’m here” I continued, now a little confused. “Oh” she says’ “I don’t know too much about that I’m afraid but we should still do the tests and hopefully the GP will know what the results mean.

So, I breath into it, 3 times long and slow and 3 time as hard as I can as long as I can. As always, black dots appear in my eyes, everything goes fuzzy and I come close to, but not actually passing out. The nurse congratulated me. Apparently I did a lot better than she had expected. She printed off the results for the doctor to look at. I asked how I was looking as at my last test I was told my ‘score’ was 47%. She said she wasn’t sure but thought it was actually 53%. This confused me as I understood that COPD never improved. Hopefully it does!

My next appointment was with my GP. He looked at the results and was also confused. Given that I had spent the last 5-weeks on antibiotics and steroid without any apparent affect he hadn’t expected such results. He checked my heart as this had been bouncing around between 105 and 127 just sitting there: this was clearly inefficient. This was probably what was making my breathing so short though he did stress (pre-empting my next question) that this didn’t mean my COPD had gone away.

As I write this, I’m sitting on a train on my daily journey into London. During this time, according to my shiny new apple watch, my pals has been bouncing up and down between 67 and 129 and it does actually feel that way too.

The decision was to double the strength of my ACE Inhibitor and have another review in three weeks.

So, I am in a state of confusion and even despair. Do I have COPD or do I not have COPD? I think I do. Is my heart like it is because of COPD or is a problem in its own right? I have no idea. Will I ever again see somebody who knows about COPD. Confidence is low on that one.

I do know however that I need to fight my way out of the current situation. One way or another, I’m going to get back out on my bike and even start running: Both very slowly. But at least that will help me lose weight which must surely help my heart.

We shall see.

COPD – Creator Of Podge’s Despair

Poor Podge


For a change, this isn’t about cruising 🙂 This is about me wanting to reflect on my health and hopefully push me towards a better, healthier lifestyle.


Ever since I was a child I have suffered from Asthma and over the years I was unfortunate enough to suffer a number of extremely bad asthma attacks requiring hospitalisation. So, why, oh why did this twerp start smoking at the tender age of 14. Inevitably, more attacks ensued but many of these were quickly fixed by not smoking for a while but still I smoked. eventually however, towards the end of the last millennium I stopped.

How did I stop? I saw a news paper article about the Paris to Hayling Cycle Challenge (organised by the Association of Charitable Endeavours) along with a photo of two rather fetching young ladies. That clinched it for me. I’ll stop smoking, buy a bike and train for the challenge and cycle with those two young ladies. I signed up the very next day. Being back on a bike again gave me such freedom, which I find hard to describe. I do know however that whatever sort of day I’d had, I would go out on my bike, think through all the issues of the day, put things right in my mind while all the way setting small instant challenges such as sprint between two markers or climb a particular hill in the highest gear possible. I loved it. I loved my bike, I loved it so much I bought more: See here for the list of bikes I’ve had over the years. I never gain saw those two young ladies, boo.

Eventually, I became a committee member of the Association of Charitable Endeavours (ACE), then secretary and route planner as part of a splinter group (The Reccecrew) and would go out to plan training rides and seek alternate routes in France (see here for an idea of a recce in France). I had such great times. But then, one New Years Eve, I weakened and had a cigar. Then another and so I was back smoking again and did so for another three years and then gave up once more and returned to cycling.

I entered once again the Paris to Hayling Cycle Challenge but this time, I took a group of a dozen riders, we called ourselves Team-SIM and we sailed to Bilbao and cycled from there to Paris to meet up with the main ride. This was to be when everything changed for me.

On my first climb of the first day. my heart rate, according to my Garmin, hit 256. I had to stop. I rested for 10 minutes then started off again. This happened twice more before I gave in and finished that day in the support van. This happened two more time in France. I felt as though there was nothing in any of my joints. Clearly, something was wrong.

Returning home, I inevitably went to see the Doctor who obviously sent me to the Cardio department for a check out. The consultant after running a number of tests and getting me to wear heart monitor for a day told me he could find nothing wrong and that I should go home and ‘Die of Something Else’ (his words, not mine).

My next visit was to the Asthma Clinic for a periodic review (never had one of those before) and after various tests I was told that I had Chronic Obstructive Pulmonary Disease (COPD): Personally I prefer my own naming of Codgers Old Puffing Disease (COPD) :-).This was not good news. It was irreversible and degenerative. It would over time get worse. The timescales would depend on my lifestyle. Cycling has to be my lifestyle.

At my last review with the COPD Nurse I was told that my obstructive lung effectiveness was sitting at just 47%.  In my book, that less than one lungs worth of air for each breath. I’m sure the maths isn’t quite that simple: There is for instance the factor of restrictive breathing exacerbated by weight causing pressure on the diaphragm. But whatever, when breathing it feels like one lung so I’m sticking with that.

Now, one of the consequences of COPD is that the heart has to work so much harder to move what little oxygenated blood it can around the body. But because of the limited supply, the heart becomes in itself erratic and causing to to go into Arrhythmia which can and does feel extremely uncomfortable and makes exercise difficult. The consequence of this is that my cycling lifestyle became challenged which meant I put on weight which aggravated the restrictive breathing even more. I’m sure you get the picture.

So, my last review, 47% put me at stage 2 possibly moving to stage 3. My last proper review was three years ago. How do I feel today?  I thought I felt bad, I felt as though I was entering, what I call, the valley of despair. But then I read about somebody with COPD completing the London Marathon.

I’ll tell more in my next COPD update.

Poor Podge

 

I’m mindful that I promised myself that I would post an update at least once a week. Now obviously, when I’m sailing the Seven Seas, on a cruise ship I have much to write about; in fact, I could post almost daily – network connectivity permitting of course.  Anybody who’s read about some of my recent cruising adventures will know that connectivity from the middle of the ocean isn’t that great. In fact for my last cruise, unbeknown to Mrs Me, I spent £300 on WiFi and all I managed to post was six updates after which I gave up. And now, here I am,in the middle of a cruise famine, I find myself struggling to come up with something to write about.

As, I sit on a First Great Western HST taking me from Paddington to home (Hungerford), I’m bashing away at the key pad and seeing all these words come on my screen and still I don’t know what to write about. I suppose I could write about my daily adventures on the rail network trying to get from home to my office by London Bridge. If everything fits together, it can be done one hour and forty minutes. In the real world of course and taking door to door into account, it takes around two hours and thirty minutes and most days, that’s how it goes. On the odd occasion however, i.e., at least once a week, something goes wrong: An underground line is suspended; Person on the line; overrunning rail works; early morning driver fails to turn up; train faults, etc.: The list goes on. The best issue to date however is when the train had to crawl almost at walking pace because the speedo didn’t work and it had to make its way to Reading (from Paddington) where the train could turn back to front so that the back became the front where there was a working speedo and the train could then do what a high speed train is supposed to, whiz along at high speed. There was of course the occasion when a train got stuck because it had run out of ‘air’: Yet all the passengers seemed to be breathing just fine. It turned out that the train need air (compressed) for the brakes. This week however , it was a broken underground train on the Bakerloo Line. This meant me getting a slow overground train – I could explain why, but I won’t – to Reading where I could catch a connecting train to Hungerford, only to see such train pulling away as I dashed towards it. This left me with a 24 minute wait for the next train which actually overtook the train I missed. Ironically, I had to change and catch said missed train for the last two station leg. On that occasion, my journey took just under four hours. But, do I really want to write about my train adventures? Probably not, so I won’t write about them. So what what do I write about?

 The Next Day, and –

I still don’t know what to write about. I did think of writing about somebody who passed me a piece of work a couple of days ago while telling me that it’s quite urgent as a customer is seeking a speedy response. When looking through the ‘piece of work’ I noted that it had been sitting in somebody’s tray since the middle of April. Had the work come to me then, it would by now have been completed, the customer would be happy and there would have been no fretting about it’s now urgent nature. Once again, somebody’s lack of forethought and planning constituted my crisis. But then I thought, no, nobody wants to read about that so I won’t write about it.

So, just what do I write?

Then it struck me: I’m sitting here at the kitchen table, looking out of the window seeing great expanses of blue sky with just a few fluffy clouds and the sun just sitting there like a big yellow duster with just the gentlest of breeze teasing the tree tops and I start planning todays cycle ride. Today, I shall cycle a 30 (ish) mile loop taking me up onto the Chute Downs from where I can gaze down and look at the wonders of nature with the oh so english fields of rape reflecting the suns rays, the sheep and their young, bouncing around and no sight nor sound of a single car. That has to be one of the nicest places to cycle to, cycle along, and reluctantly, cycle from.

From there, it’s a series of climbs and descents, up past the gliding club where once again I shall stop and watch the gliders being coaxed into the air by a winch, or sometimes, a small plane; When at an optimum hight, the glider is released and it soars silently  checking out the clouds, competing for air space with Red Kites and Buzzards before making it’s way slowly and gently back to the ground. Again, notwithstanding the small plane, all is silent and nature is at peace with all. After that, it’s a gentle undulating route back past The Swan Inn – a great place to stop if you’re out cycling / walking (shall I [again] be tempted to sample their wares?) before eventually arriving home feeling refreshed having blown the cobwebs away and taken in all that Mother Nature had to offer. But I can’t write about that. I can’t write about that because it’s blowing a hooley outside with dark angry clouds and rain to match. Also of course, the idea of me getting on my bike just now is still an aspiration rather than reality (COPD has seen to that 😦 ). So, I can’t write about that either.

So, I still don’t know what to write about.

There is of course the fabulous weekend, just past, that I spent with the lovely Mrs Me at the Millstream in Bosham near Chichester. We like to spend as much time as we can in and around Chichester and Bosham. The town, the village and the surrounding countryside is just so beautiful Check out the You Tube video by Patrick Macnee to get a feel for the area. Having had an almost complete makeover inside we felt we should go back to see how it looked. It looked LUVERLY. And with the beautiful weather as our constant companion we sat out in the gardens enjoying a lovely glass of Rioja (Me) and Rosé (Mrs Me) before wondering down to the harbour to see if the Bosham Car Wash was in action Watch the video, it is hilarious). Unfortunately it wasn’t, though this did mean that with the tide out, we could make our way round to the Yacht  Club, sit, and watch the sail boats drifting in and out before wondering back through the village wondering at the Wisteria, which seems to be doing extremely well everywhere this season though I have no idea why.

Now, Mrs Me being Mrs Me: No trip to Chichester is possible with a visit to Russell & Bromley, purveyor of fine shoes and handbags: No trip to Russell and Bromley is possible without a purchase and it was with some rightly placed trepidation that I entered the establishment, dutifully following Mrs Me. We looked at boots; we looked at flat shoes; we looked at wedges; we looked at loafers; we looked at same rather high stiletto feel shoes; we even looked at some kinky boots; we looked at large handbags; we looked at small handbags: Briefly, we looked at mens shoes before returning back to ladies shoes. Eventually with great determination, she found a pair she liked. “I’m sorry Madam” said the shop assistant, “we don’t have these in your size” (oh no I thought, my weekend is going to be awful), “But” he said, “I’m sure they are available in one of the other stores: Let me check”. Yep, they did and even better, they would deliver them to home so it was with great joy that we were able to make a purchase and continue shopping. But, I felt there was still some sadness in Mrs Me. Then the penny dropped, we had come to Chichester, bought a pair of shoes but still she had nothing to show for it. But, his Podgeness is sometimes too clever for his own good. He espied a jewellers that did some rather attractive and reasonably priced bracelets, and having pointed them out to Mrs Me, we went in, tried them on (yes, she needed two), purchased them and Mrs Me was once more a happy bunny and with that, we returned to The Millstream for more much needed wine. But, does anybody want to know about all of this? I doubt it, so I won’t write about it. So:

What can I write about?

I don’t know: I haven’t a clue, so for this week I’m afraid I’m going to have to fail my objective and not write anything. Next week, I will try better. I promise. Maybe, just maybe, I’ll include better pictures. But don’t worry, I won’t be in any of them.